Huntington's disease is a genetic hereditary disease. Huntington’s deplete the brain slowly and usually erupts in 40-50 years of age. Huntington’s has several stages. In the beginning it is mostly cognitive symptoms such as anxiety, depression and in some cases schizophrenia. Slowly it becomes more physical and eventually the disease will take over the body, so you are unable to walk, talk or think clearly.
Anders, Katrine and Hans Peter have Huntington's. They live at Tangkær, an institution in Djursland, Denmark.
Anders is 33 years old and has Huntington's. His favorite movies are Terminator and all Disney movies. He calls the staff in Tangkær by the names of various Disney princesses, thats how he remembers who they are.
Anders does not have much language left as a consequence of the disease, therefore he expresses his anger and frustration by lying on the bars of his bed.
ID pictures from before Anders got Huntington's.
Anders is from Lolland, Denmark. He has very little contact to his family. He moved into Tangkær three years ago.
Recipe that Anders got from the kitchen staff because he wants to cook his favorite meal. Anders' biggest wish is to be a chef.
Tangkær is an institution for people with Huntington's. There are 14 people living at Tangkær.
Katrine is 45 years old and has had Huntington's for about three years.
Read Katrines story here
Katrine, 1999. Katrine use to work as a pedagogue in the psychiatry.
Katrine can't control her body movements, but her mind is still working. She can listen and sometimes understand, but aren't able to talk clearly because of weak muscles in her throat.
She is suffering from anxiety and is afraid of whats going to happen with her. She gets daily medication for anxiety and to control her involuntary movements.
It's hard to say how long one can live with the disease. The average life expectancy is 10-15 years. There is no cure.
Hans Peter is 42 years old and has Huntington's. He likes racingcars, airplanes and his dog Sisi.
Hans Peter gets help for all daily routines like shaving and brushing teeth. Huntington's make him forget how to do it.
Every morning Hans Peter walks his dog Sisi. He knows there will come a day when he cannot walk her anymore, because he will end up like Anders and Katrine. It makes him sad to think about that. Hans Peter is on medication for anxiety and depression.
Model of the worlds fastest plane, that Hans Peter made.