Huntington's disease is a genetic hereditary disease. Huntington’s deplete the brain slowly and usually erupts in 40-50 years of age. Huntington’s has several stages. In the beginning it is mostly cognitive symptoms such as anxiety, depression and in some cases schizophrenia. Slowly it becomes more physical and eventually the disease will take over the body, so you are unable to walk, talk or think clearly.
Katrine and Anders have Huntington's disease. They live at Tangkær, an institution in Djursland, Denmark.
Katrine is 45 years old and has had Huntington's disease for about three years.
Read Katrines story here
Katrine, 1999. Katrine use to work as a pedagogue in the psychiatry.
She can't control her body movements, but her mind is still working. She can listen and sometimes understand, but aren't able to talk clearly because of weak muscles in her throat.
Katrine is suffering from anxiety and is afraid of whats going to happen with her. She gets daily medication for anxiety and to control her involuntary movements.
Anders is 33 years old and has huntington’s disease. He has very little contact to his family and moved into Tangkær three years ago.
Anders loves Terminator movies and Disney princesses. When he needs to relax and rest he watches Terminator on the TV in his room.
Pictures from before Anders got Huntington's disease.
Anders does not have much language left as a consequence of the disease. Often he gets angry and frustrated. To express his frustration he lies on the naked bars of his bed.
It's hard to say how long one can live with the disease. The average life expectancy is 10-15 years. There is no cure.